However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). Thank you sincerely for your time and information. Bicuspid aortic valve | Radiology Reference Article - Radiopaedia It might be wise to have discussion with your doctor about the particular activities youre concerned about. March 7, 2023, Rob Riley with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. 2; I take BP medication namely Amlodopine & Ramipril which has lowered my BP. I am considered elite in my age division. My exercise is limited to 30 minutes of moderate carido, with no weights. Athletes should have detailed discussion with their doctors about any prudent limitations to exercise after operation and settle on a mutually agreeable plan. Have you heard about the PEARS procedure? The issues of when, how, what sports are safe, etc. These Famous People Survived Congenital Heart IssuesYou Can, Too In your case, though, the infection might well influence the healing process. Is it possible that the valve will get loose? Im 32 years old and back in 09 I discovered I have a BAV. His BAV is causing very little back flow. Kimberly was born with an abnormal valve, but didn't begin to develop symptoms until her 40s. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. I didnt get it.". In addition, I will get a random bout of lightheadedness when standing or sitting in a awkard position. Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. It usually consists of three flaps of tissue what are called valve cusps. Q And A: What is a bicuspid aortic valve? - Medical Xpress I appreciate your response, thank you for taking the time to write me back. He seen our family doctor that week who confirmed the murmur. Best to mention your participation in the marathon when you have the tests done. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. I wish you both all the best. When you start seeing changes with regurgitation does it progress quickly? May 10, 2010, 4:50 PM. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. A 2nd opinion might help by bringing another set of eyes and ears to your problem. will need careful consideration by your physicians who know all of the pertinent details. Parenthetically, it may be time for an update. Is a CT or MRI absolutely necessary for measuring the aortic diameter? Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. Thank you to every doc and nurse on my team!". Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. I am now down to seeing my doctors every 3 years or so and have been doing very well. Obviously, I underwent emergency surgery to replace the aortic valve (Medtronic open pivot mechanical valve) and have the aneurysm repaired with a dacron graft. However, is there any advantage to having them screen in their first decade of life, if they are not showing any symptoms? The pitfall, though, is that our native aortic valve is itself very efficient. I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. Latest Advances in the Treatment of Bicuspid Aortic Valve In 1997, he underwent surgery for a replacement valve made of his own pulmonic valve, which itself was replaced with a donor's. I had surgery when I was 10 years old to replace my bav with a St.jude mechanical valve. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. Advertisement. It also featured an extended chat with Schwarzenegger's old boss James Cameron, and, despite an attempt, not even the mighty Arnold could pry any Avatar 2 secrets loose. I have BAV with an ascended aorta and heart murmur. It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. This visit we were told it could be a few years before anything needs to be done. Ive been affected by heart disease practically my whole life, she said. Follow up for development of these functional lesions is indicated. Bicuspid Aortic Valve with trivial AR. Very likely an operation will be needed at some point in the future. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. I have also been advised that running intervals at over 80% max heart rate would not be sensible. John Fox, NFL coach, suffered from Aortic Valve Disease. Im not looking forward competitions nor marathons. Im wondering if you can advise me. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. diagnosed wid BAV AND AS WITH AR My cardiologist is not concerned. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. Reply. I started experiencing palpitations last year along with several instances of light-headedness. Hello dear doctor. It can also lead to aortic stenosis , and is more . EKG and echocardiogram were done showing BAVD. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. Considering the results of my stress test and TOE, do you think it could be my heart and should I seek 2nd opinion. Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves. Measurements of aortic diameter can be made with echocardiogram. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. After 5 years of amateur competitive rowing, I had no problems keeping up with my peers whilst training at lower intensities. It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. Answers to your questions. At 4.0 cm, its important to be thoughtful about activities. Up until this time shes played volleyball, basketball and has even run track in elementary. Flaps of tissue on the valve open and close with each heartbeat. Barb. Ive starting going to the gym again and doing cardio with weights to tone up. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. My aortic root is 4.06 cms. In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. Can you clarify what may not be true please? The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. It would be great to know what happens to groups of patients after AVR and aortic replacement that have returned to their various sports. Did the heart have to work harder to compensate? Echo Features of a Bicuspid Aortic Valve | 123 Sonography That said, the recommendations dont address WHEN that screening should occur. Enjoy! Like I said, peoples experiences are all different. The flaps are called cusps. Does the (unreplaced) aorta enlarge over time? The truth is that there is not much scientific information about what happens to such athletes if they do return to endurance sports. Valvular Heart Disease | cdc.gov But I recognize that not all cardiologists or heart surgeons would agree. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. It is very frustrating as my doctor would prefer to see me live the rest of my life with restrctions and have the aneurysm stabilized rather than take a chance on surgery and possibly returning to my normal lifestyle. Do you have any info or recommendations about this? Bicuspid Aortic Valve: Role of Multiple Gene Variants in Influencing I am 26 yera old , I have aortic aneurisem. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. Lynn. It has allowed me to do the thing I enjoy doing in life. Consensus guidelines suggest restricting activities in athletes with BAV and aortic diameter >4.0 cm. You have a good understanding of the issues. She was originally under the impression she felt the way she did simply because she was exhausted. Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. This was 7 months ago. To make matters worse, I had a bout of AFIB, about 6 months ago. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. I would prefer not to stop. And, if so, how did things go? In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. I lifted weights for many years and spent almost all my life in physically demanding jobs. A lot of people have it, she told Access Hollywood in 2009. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. We have decided to wait and watch. This gives a chance for the sternum, which was split during the operation, to heal completely. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Both are important in deciding if and when operation is needed. Who Qualifies for TAVR. my age is 20 right now James Cameron checks in from Pandora with a status report. From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. They can occur separately or together. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. I wonder if there is also a psychological factor involved. Bicuspid Aortic Valve - Symptoms, Diagnosis, Treatment & Surgery Heart Valve Disease Personal Stories | American Heart Association There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. Aortic stenosis, the narrowing of the aortic valve. Bicuspid Aortic Valve: Symptoms, Diagnosis & Treatment, Biological Tissue Valves: Pig, Cow, Horse & Human, The Patient's Guide To Heart Valve Surgery. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. In addition to the European guidelines, there is also an American set of guidelines published in the Proceedings of the 36th Bethesda Conference. Aortic valve repair is sometimes possible. Now I take brisk walks and run on the treadmill only occasionally. I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. Not only the degree of aortic regurgitation, but also the degree of enlargement of the nearby aorta, should be taken into consideration when settling on limits for exercise. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. For example, are there data that shows what happens to aortic diameters once sports have been stopped? I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. It is very informative. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? Im not sure I have all the answers from afar. and my valve is working quite well (mild aortic regurgitation). What is a TAVR? I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. No aortic root dialation. Bicuspid Aortic Valve: Diagnosis, Treatment, and Outlook - Healthline "I am lucky to be here.". Thank you to every doc and nurse on my team.". My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. You might keep in mind that trans-catheter aortic valve replacement (TAVR) can be used to re-replace the aortic valve. Tyler. ANYTHING other than walking and golf? Is it like keyhole surgery? This award-winning website has helped over 10 million people fight heart valve disease. 1) What kind of sports are recommend to me according to my situation? He wasnt real worried about me and I have regurgitation (mild) and (mild) aortic root dilation.. Do u think it would be OK to lift weights and if so maybe u could give me a better understanding. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. Best Valentine's Day Restaurant Specials 2023. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. Over time, there will be some patients who develop problems with the prosthetic heart valve or enlargement of some portion of the aorta (that hasnt already been replaced) that requires operation. Dr Creswell, 100 Black-Owned . I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. My son is 12 years old. Im a 42 year old male and have been a highly competitive distance runner since high school. I am a marathoner with BAV and no other cardiac issues. I hadnt heard about the technique previously. Im a 30 year old male who is currently living in Asia with family. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. Celebrities with Heart Valve Disease | Wonder Sbp. when I discussed this with my Dr. he reassured me that its not my heart causing it. Aortic root is 4cm and currently waiting for a 6month check up to see how it`s going. He was forced to stop playing football at 11. My son was diagnosed with BAV, by chance, when he was 7. Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. what recommend me? This might reasonably translate into some measurable improvement related to physical exercise. Thanks for sharing your sons story with BAV. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. What is the average life span of a tissue valve? I made appointment with my cardio, to clear that up, dont worry :). The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. From afar, I dont have much to add. His doctor said his heart look very healthy and no other issues. Thank you for your assistance in this matter. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. We just saw the cardiologist in July and again same symptoms and no significant cardiac changes . The Best Amazon Presidents' Day Deals of 2023. I knew none of this until a year ago. I would like to get back into it, but obviously I have been having some concerns. 7373 Perkins Rd At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. I have read that strength training is beneficial for heart health. Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. Here are stories of some celebrities with this condition: Not everyone who has a congenital heart defect knows about it, so its important to be vigilant about the health of your heart. Currently complete in 5-a-side football and have done for life. During the Ross Procedure, the aortic valve is removed. Can you direct us to ANY research on the effect of endurance sports on AVR patients? Only your cardiologist and heart surgeon will be in a position to make those considerations. Do you think the jiu-jitsu (e.g. I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. He sees his cardiologist every year. 2. I was just curious if there any way to know if my valve is affecting my times at all? For me, its about gender equality. Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. It is believed that Schwarzenegger had a bicuspid aortic valve which led to a Ross Procedure operation performed in 1997. "Schwarzenegger's pulmonic valve was successfully replaced.". This was during a 12 week intense training block where my resting heart rate got as low as 42 bpm. O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. This has been true as long as I can remember in all sports I seem to have to put a lot more in to get the same out as others. Im highly considering this option, after 4 months of research and appointments with doctors. Bicuspid aortic valve is associated with abnormalities in the coronary artery anatomy in about 2% of patients, including anomalous origins of the coronary arteries and upwardly displaced coronary ostia. Also he told me I can lift weights and do other activities. Bicuspid aortic valve is a heart problem present at birth. If you wont we can share experiences about healing and progress, its pretty much same situation. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. Yes, there are certainly individuals with BAV who go a lifetime without needing valve replacement or aortic surgery. Dear Dr. Creswell, It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . Dwayne E. Russell Practice Essentials. Finally, many patients are able to return to their sports after successful operation. The readers here would love to hear back from you as you work through this. I had an exercise tolerance test recently and they seemed happy with my results so fingers crossed thats a good indication I can carry on training hard! Oh, plenty. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. Would this constitute as too much in your opinion ? A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. They call this type of heart attack the Widow Maker," she wrote. To much info to much detail so much information and advice. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. ps. I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). Tachcardaia beetwen echo due that doctor couldent see clearly. I dont know what to do .. "I had to make lifestyle and diet changes, she said. The increased stroke volume and cardiac output may cause . Body contact sports may pose some danger to athlete patients who take blood thinners. He will be rechecked with an echo, BNP blood test & MRI every 6 months. That said, guidelines from the 36th Bethesda Conference suggest that BAV, without enlargement of the nearby aorta or problems with the aortic valve, shouldnt preclude any sports activities.including weight lifting. They are located between the atria and corresponding ventricle. 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the . In 2017, there were 3,046 deaths due to rheumatic valvular heart disease and 24,811 deaths due to non-rheumatic valvular heart disease in the United States. Im not surprised that youve received a conservative recommendation about exercise. Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. The aortic valve lies between the heart and the aorta, the main artery . I cant do that justice here. Celebrities with congenital heart disease No enlargement of aorta or any other problems. I have only trivial aortic regurgitation. When patients have moderate to severe aortic regurgitation, exercise can often be difficult. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta.
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